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“On my journey with rheumatoid arthritis, I have realized that it’s not only about fighting the condition. Living with it one day at a time- is what it’s all about. Every day I chose to keep going, rise above, and embrace all the good, the bad, and the ugly of RA.” -Effie

WHAT'S HOT?

I AM INVISIBLE NO MORE

My three-part documentary-style film series for those living with invisible disabilities and illnesses is NOW LIVE on youtube!

 

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Please share these videos to help raise awareness

 

Arthritis Warrior Wednesday

“Hello! I’m Kayla and I’m 24 years old. I’ve had Rheumatoid Arthritis for five years this month.

#MySymptoms Poem

This week many of us arthritis warriors raised awareness for World Arthritis Day on October 12th by either sharing our stories, statistics, or wearing arthritis gear. I recently shared a poem on The Mighty giving a glimpse into the symptoms I experience while living with rheumatoid arthritis. I am inviting you all to join in on sharing a poem about your symptoms through the #MySymptoms Poetry Link Up.

Essential Oils Hot Topic Talk with doTERRA Wellness Advocate Carolyn Kosanouvong Walker

Prior to starting my journey with essential oils, I didn’t know anyone who was using these alternative supplements to help with muscle and joint discomforts or sleep difficulties. In 2016, I met a doTERRA Wellness Advocate in my city that helped me get started on customizing essential oils for my specific needs.

Arthritis Warrior Wednesday

I was diagnosed in 2012 while I was going for my masters in my mid 40’s. It was very aggressive and my father also had a very aggressive form of Rheumatoid Arthritis.

How to Access Innovative Treatments for Rheumatoid Arthritis?

FindMeCure is an online platform allowing every person struggling with a medical condition to access treatments in development.

Arthritis Warrior Wednesday: Pre-Challenge on Instagram Post

Since the first week of May started mid-week on a Wednesday, I decided to share the main character of my children’s book that I have been working on, for the first Arthritis Warrior Wednesday featured spotlight. 

Arthritis Warrior Wednesday

Hi! My name is Erika. I’m 31 years old and I was diagnosed with rheumatoid arthritis at the age of 28.

Arthritis Warrior Wednesday

I was diagnosed with RA in 2012 after childbirth. I’m a full-time working mom in Los Angeles.

I’m a Nominee for the 2018 WEGO Health Awards- Here is how you can help!

I am excited to announce that I have been nominated for the WEGO Health Best in Show Blog Award in the 2018 WEGO Health Awards.

When I Was Questioned for Using a Disabled Parking Placard

Almost ten years ago, my integrity was questioned regarding my chronic illness and disability for the first time. I was about four years into my diagnosis with rheumatoid arthritis, and despite the dark cloud that loomed over my head on a daily basis, I felt on top of the world.

Chronic Readers Club Q & A Interview

Chronic Readers Club was inspired by a combination of things. Since becoming chronically ill, I’ve felt a need to connect with other people who truly understand what my life is like. The idea to send books was inspired by my love of reading, which was instilled in me by my mom. She’s actually a librarian!

The Most Comfortable Gloves for Arthritic Hands During the Winter

With winter in full swing, I wanted to share some gloves that those with arthritis can benefit from. Many are on sale now as the fashion industry gears up to introduce spring merchandise, so grab them while you can.

Connect2Health Conference and WEGO Health Awards Recap

If you weren’t able to tune into the WEGO Health Award ceremony on the main stage at Connect2Health via Facebook live in Boston last week, you can view some of the award speeches and more here.

15 Life-Changing Habits People with Chronic Illnesses Can Do All Year

I realized that as we get older, our priorities change. Those of us with chronic illness, autoimmune illness and various disabilities, usually have the same priorities as our peers, but the one thing that will always have to be the biggest priority is: our health.

Chronic Illness and Relationships

Dating isn’t easy, especially when chronic illness is thrown into the mix. Just like any relationship there can be challenges along the way. Good communication, trust, understanding and unconditional love, are some of the elements needed for a healthy long-lasting union no matter the circumstances.

12 Morning Affirmations to Slay Arthritis When it is Getting You Down

Let’s face it, those of us with arthritis, autoimmune arthritis and related conditions do not have it easy. We wake up every morning not knowing what will hurt, what will be inflamed and what will stop us from conquering the day as we would see fit.

Rheumatoid Arthritis vs. Social Life: How to Cope and Thrive

One thing that we aren’t sent home with though, is a prescription on how to navigate our social life- which is a big part of our mental and emotional health, that can be impacted greatly by illness.

The Good, the Bad and the Ugly of a Total Knee Replacement

Growing up I remember doing class assignments that asked us where we envisioned our lives to be in five, ten, twenty years. Being diagnosed with rheumatoid arthritis at eighteen and having a total knee replacement at twenty-nine years old, was not on my radar.

MAY RECAP: Walk to Cure Arthritis Event- Team RARA Tribe

  Around this time last month, I decided to participate as a team captain in my first ever Walk to Cure Arthritis (5K Walk Event). I gathered my Arthritis Anchors-  my supporters new and old, raised some funds for a cure, the hard-working researchers and better...

My Arthritis Anchors

As promised- here is my personal list of Arthritis Anchors.

If you’re just tuning in you can reference back to my blog post in May about what an arthritis anchor is here and tune into me speaking about it on my YouTube Channel, RA and Myself.

Why the Coronavirus Scare Resembles What It’s Like to Live with a Chronic Illness

Why the Coronavirus Scare Resembles What It’s Like to Live with a Chronic Illness

As individuals, we all face unknown aspects of our lives at one point or another. Now as a collective, we are all in a state of unknown together regarding the COVID-19, better known as the Coronavirus. Mass fear and hysteria of the dangers of this virus have people in a fight or flight survival mode. It’s in our human nature to run from a threat and to protect oneself and loved ones. Though interestingly enough, many people who live with a chronic illness have experienced this survival mode on an ongoing basis.

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Rheuma Tips! Did you know? #17

Rheuma Tips! Did you know? #17

My tip for this month is to find a quiet place and take a moment to write down a list of everything you are grateful for. A friend of mine recently posted that you, “Can’t spell RA without Gratitude.”

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Arthritis Thought of the Month: Question #17

Arthritis Thought of the Month: Question #17

Are you grateful that you got sick? This question may seem a bit odd to some. Why on earth would you feel grateful for something like a diagnosis, that turned your life upside down? Those feelings and thoughts are valid. Then there is the other side of the coin, where people have been able to see the blessing and silver lining. It’s normal to one day feel positive and another negative about getting sick. How would you answer this question right now at this point in your life? Let me know in the survey below!

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Arthritis Thought of the Month: Question #16

Arthritis Thought of the Month: Question #16

Have you been affected by Step-therapy?

Also known as “fail-first”- a troubling practice employed by a majority of insurers that forces patients to try therapies preferred by the insurance company before their doctor-prescribed medication will be approved, even when doctors are certain the initial therapies won’t be effective.

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Keeping it Real With Arthritis Stories

Whether you are living with rheumatoid arthritis or another type of arthritis, we all have a unique story that deserves to be voiced, heard and shared. Equally of importance, is showing an accurate depiction of those living with the disease and providing a real-life glance of who the person istheir interests, passions, hobbies, goals, career, likes, dislikes and so on, behind the veil of arthritis.

Not only can sharing our stories raise awareness but also illuminate our paths for us to see that we are not alone on this journey and have  common experiences with one another.

Rheuma tips! Did you know?

Arthritis Thought of the Month

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“On my journey with rheumatoid arthritis, I have realized that it’s not only about fighting the condition. Living with it one day at a time- is what it’s all about. Every day I chose to keep going, rise above, and embrace all the good, the bad, and the ugly of RA.” -Effie

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