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Chronicling the good, the bad, and the ugly of rheumatoid arthritis.

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I AM INVISIBLE NO MORE

My three-part documentary-style film series for those living with invisible disabilities and illnesses is NOW LIVE on youtube!

 

Click here to watch

Please share these videos to help raise awareness

 

When I Was Questioned for Using a Disabled Parking Placard

Almost ten years ago, my integrity was questioned regarding my chronic illness and disability for the first time. I was about four years into my diagnosis with rheumatoid arthritis, and despite the dark cloud that loomed over my head on a daily basis, I felt on top of the world.

Who Are Your Arthritis Anchors?

Now you may be thinking to yourself, well what is an arthritis anchor? Those who truly care and support us shine their light and help us navigate the ups and downs life can bring, by walking right beside us. These people are our anchors.

WHAT DOES IT MEAN TO SHINE YOUR LIGHT?

I ended up walking out of the office with only a piece of paper in my hand and have made it a point to pay it forward since then. I may not know the woman’s name but this memory will stay with me forever. When have you shined your light on someone and when has someone else done the same for you? 

Arthritis Warrior Wednesday

Hi everyone, I’m RA Guy! I’ve been living with rheumatoid arthritis for almost two decades now, since the age of 29.

5 Ways to Have a Fun ‘Staycation’ When You Can’t Travel Due to Illness

Everyone deserves a vacation. Daily responsibilities can add up quickly, leaving us drained and in need of some TLC. After all, we only have one body and we need to treat all aspects of our physical, emotional, mental and spiritual bodies with respect.

Keeping It Real With Arthritis Stories [Spring/Summer 2020 Edition]

These arthritis stories by a self-taught acrylic painter, an occupational therapist, a yoga instructor, and more will help you stay positive, inspired, empowered, and motivated to not let this disease define you.

Invisible in Chicago: What’s It Like to Live Here with Chronic Illness?

The best thing about Chicago for those living with chronic illness is the quality of medical professionals here. Especially in the integrative, alternative, functional and holistic medicine fields.

Keeping It Real With Arthritis Stories [Winter Edition 2021]

The Keeping It Real With Arthritis stories are back and better than ever. For the first time, we hear from both men and women. These fifteen stories are a must-read if you or anyone you know happens to be diagnosed with any of the one-hundred types of arthritis out there. These riveting, powerful, and encouraging stories will help those feeling alone and hopeless, to become empowered and hopeful for positive changes in life.

Making a Difference with Diversity, Equity and Inclusion In Books: PART 2

To help amplify the voices of diverse authors, I have curated a list of children’s books from the author community. If you have missed Part 1 of this article series, make sure you check out other children’s books from picture books, middle grade, and young adult.

Why the Coronavirus Scare Resembles What It’s Like to Live with a Chronic Illness

As individuals, we all face unknown aspects of our lives at one point or another. Now as a collective, we are all in a state of unknown together regarding the COVID-19, better known as the Coronavirus. Mass fear and hysteria of the dangers of this virus have people in a fight or flight survival mode. It’s in our human nature to run from a threat and to protect oneself and loved ones. Though interestingly enough, many people who live with a chronic illness have experienced this survival mode on an ongoing basis.

Keeping It Real With Arthritis Stories [Fall 2020 Edition]

These arthritis stories by a traditionally published and award-winning author, criminology and psychology student, a fierce advocate, and founder of the #injectwithme campaign, will hopefully help you realize you are not alone and that your goals can be achievable, no matter what life throws your way.

Arthritis Warrior Wednesday

I’m Carolyn and I live in California. I was diagnosed with Juvenile Rheumatoid Arthritis at the age of 3 years old when my family was still living in Southeast Asia where I was born.

Breaking Free from Chronic Illness

Ways to break free from and cope with the constraints of chronic illness, in order to live your best life.

Arthritis Warrior Wednesday: Pre-Challenge on Instagram Post

Since the first week of May started mid-week on a Wednesday, I decided to share the main character of my children’s book that I have been working on, for the first Arthritis Warrior Wednesday featured spotlight. 

15 Life-Changing Habits People with Chronic Illnesses Can Do All Year

I realized that as we get older, our priorities change. Those of us with chronic illness, autoimmune illness and various disabilities, usually have the same priorities as our peers, but the one thing that will always have to be the biggest priority is: our health.

My New Attendee Experience at HealtheVoices 19

This past weekend I had the opportunity to attend the fifth year of #HealtheVoices19 in Dallas, Texas. I left back home to Chicago more inspired and empowered than ever, here are five reasons why.

Chronic Readers Club Q & A Interview

Chronic Readers Club was inspired by a combination of things. Since becoming chronically ill, I’ve felt a need to connect with other people who truly understand what my life is like. The idea to send books was inspired by my love of reading, which was instilled in me by my mom. She’s actually a librarian!

Arthritis Warrior Wednesday

“Hello! I’m Kayla and I’m 24 years old. I’ve had Rheumatoid Arthritis for five years this month.

Arthritis Warrior Wednesday

I was diagnosed in 2012 while I was going for my masters in my mid 40’s. It was very aggressive and my father also had a very aggressive form of Rheumatoid Arthritis.

My Arthritis Anchors

As promised- here is my personal list of Arthritis Anchors.

If you’re just tuning in you can reference back to my blog post in May about what an arthritis anchor is here and tune into me speaking about it on my YouTube Channel, RA and Myself.

Keeping It Real With Arthritis Stories [Winter Edition 2021]

Keeping It Real With Arthritis Stories [Winter Edition 2021]

The Keeping It Real With Arthritis stories are back and better than ever. For the first time, we hear from both men and women. These fifteen stories are a must-read if you or anyone you know happens to be diagnosed with any of the one-hundred types of arthritis out there. These riveting, powerful, and encouraging stories will help those feeling alone and hopeless, to become empowered and hopeful for positive changes in life.

read more
17 Years Later: The Life Lessons Rheumatoid Arthritis Taught Me

17 Years Later: The Life Lessons Rheumatoid Arthritis Taught Me

Today marks my 17th RAnniversary of when I was diagnosed with rheumatoid arthritis. Some people may think it’s odd to coin this time of my life as an anniversary, or anything to be celebrated. But I am proud of how far I have come on my journey filled with challenging downs and adversity. The resiliency and perseverance are worth celebrating. Life is worth celebrating. Because when chronic illness is thrown into the recipe, we call life, it forces you to look at your lack of immortality. A lot of my life lessons come from being chronically ill most of my youth.

read more
Holiday Gift Ideas {Curated By A Spoonie For Spoonies and Non-Spoonies}

Holiday Gift Ideas {Curated By A Spoonie For Spoonies and Non-Spoonies}

I am not Oprah, and this isn’t a list of my favorite things. Well, kind of. But I’m just a girl who happens to 1) live with a chronic illness 2) considers herself to be a quite thoughtful exceptional gift-giver. So, I have curated a list of 12 fun, uplifting, and comforting items for yourself, those living with a chronic illness or not. We can all use some good vibes and support as we head into this holiday season and New Year!

read more
Keeping It Real With Arthritis Stories [Fall 2020 Edition]

Keeping It Real With Arthritis Stories [Fall 2020 Edition]

These arthritis stories by a traditionally published and award-winning author, criminology and psychology student, a fierce advocate, and founder of the #injectwithme campaign, will hopefully help you realize you are not alone and that your goals can be achievable, no matter what life throws your way.

read more

Keeping it Real With Arthritis Stories

Whether you are living with rheumatoid arthritis or another type of arthritis, we all have a unique story that deserves to be voiced, heard and shared. Equally of importance, is showing an accurate depiction of those living with the disease and providing a real-life glance of who the person istheir interests, passions, hobbies, goals, career, likes, dislikes and so on, behind the veil of arthritis.

Not only can sharing our stories raise awareness but also illuminate our paths for us to see that we are not alone on this journey and have  common experiences with one another.

Rheuma tips! Did you know?

Arthritis Thought of the Month

Home Page 2

“On my journey with rheumatoid arthritis, I have realized that it’s not only about fighting the condition. Living with it one day at a time- is what it’s all about. Every day I chose to keep going, rise above, and embrace all the good, the bad, and the ugly of RA.” -Effie

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