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Chronicling the good, the bad, and the ugly of rheumatoid arthritis.

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I AM INVISIBLE NO MORE

My three-part documentary-style film series for those living with invisible disabilities and illnesses is NOW LIVE on youtube!

 

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Please share these videos to help raise awareness

 

The Good, the Bad and the Ugly of a Total Knee Replacement

Growing up I remember doing class assignments that asked us where we envisioned our lives to be in five, ten, twenty years. Being diagnosed with rheumatoid arthritis at eighteen and having a total knee replacement at twenty-nine years old, was not on my radar.

How to Access Innovative Treatments for Rheumatoid Arthritis?

FindMeCure is an online platform allowing every person struggling with a medical condition to access treatments in development.

Breaking Free from Chronic Illness

Ways to break free from and cope with the constraints of chronic illness, in order to live your best life.

Arthritis Warrior Wednesday

I was diagnosed with RA in 2012 after childbirth. I’m a full-time working mom in Los Angeles.

Invisible in Chicago: What’s It Like to Live Here with Chronic Illness?

The best thing about Chicago for those living with chronic illness is the quality of medical professionals here. Especially in the integrative, alternative, functional and holistic medicine fields.

Four Years Later: The Good, The Bad and The Not So Ugly of a Total Knee Replacement

I decided to write a sequel to my original blog post I wrote a few years ago, The Good, The Bad, and The Ugly of a Total Knee Replacement on the four-year anniversary of my surgery today.

Low-Energy and Low-Key Ways To Raise Arthritis Awareness this May

Chronic illness is in fact very tiresome. Going to a march and holding up signs is a great way to get involved for arthritis causes but not everyone has the time, energy or resources to engage in that. This is why I created a low-key, low-energy guide to raise arthritis awareness from the comfort of your own home.

Making a Difference with Diversity, Equity, and Inclusion in Books

To help amplify the voices of diverse authors, I have curated a list of children’s books from the author community.

5 Pain and Inflammation Products Relieving I Like Issue #2

This will be a series of my most liked pain and inflammation relieving products. Here is issue #2.

Arthritis Warrior Wednesday

I’m Carolyn and I live in California. I was diagnosed with Juvenile Rheumatoid Arthritis at the age of 3 years old when my family was still living in Southeast Asia where I was born.

Making a Difference with Diversity, Equity and Inclusion In Books: PART 2

To help amplify the voices of diverse authors, I have curated a list of children’s books from the author community. If you have missed Part 1 of this article series, make sure you check out other children’s books from picture books, middle grade, and young adult.

Who Are Your Arthritis Anchors?

Now you may be thinking to yourself, well what is an arthritis anchor? Those who truly care and support us shine their light and help us navigate the ups and downs life can bring, by walking right beside us. These people are our anchors.

My Go-To Products After Total Knee Replacement Surgery

They can be used before surgery or long after your orthopedic surgeon gives you clearance. Here are some of the items that I find helpful and hopefully you can too.

#MySymptoms Poem

This week many of us arthritis warriors raised awareness for World Arthritis Day on October 12th by either sharing our stories, statistics, or wearing arthritis gear. I recently shared a poem on The Mighty giving a glimpse into the symptoms I experience while living with rheumatoid arthritis. I am inviting you all to join in on sharing a poem about your symptoms through the #MySymptoms Poetry Link Up.

Keeping It Real With Arthritis Stories [Winter Edition 2021]

The Keeping It Real With Arthritis stories are back and better than ever. For the first time, we hear from both men and women. These fifteen stories are a must-read if you or anyone you know happens to be diagnosed with any of the one-hundred types of arthritis out there. These riveting, powerful, and encouraging stories will help those feeling alone and hopeless, to become empowered and hopeful for positive changes in life.

Why the Coronavirus Scare Resembles What It’s Like to Live with a Chronic Illness

As individuals, we all face unknown aspects of our lives at one point or another. Now as a collective, we are all in a state of unknown together regarding the COVID-19, better known as the Coronavirus. Mass fear and hysteria of the dangers of this virus have people in a fight or flight survival mode. It’s in our human nature to run from a threat and to protect oneself and loved ones. Though interestingly enough, many people who live with a chronic illness have experienced this survival mode on an ongoing basis.

Soothing Winter Cauliflower Soup and Flatbread [Vegan and Gluten-Free]

Savory vegan cauliflower soup with gluten-free and vegan flatbread.

Holiday Gift Ideas {Curated By A Spoonie For Spoonies and Non-Spoonies}

I am not Oprah, and this isn’t a list of my favorite things. Well, kind of. But I’m just a girl who happens to 1) live with a chronic illness 2) considers herself to be a quite thoughtful exceptional gift-giver. So, I have curated a list of 12 fun, uplifting, and comforting items for yourself, those living with a chronic illness or not. We can all use some good vibes and support as we head into this holiday season and New Year!

WHAT DOES IT MEAN TO SHINE YOUR LIGHT?

I ended up walking out of the office with only a piece of paper in my hand and have made it a point to pay it forward since then. I may not know the woman’s name but this memory will stay with me forever. When have you shined your light on someone and when has someone else done the same for you? 

Keeping It Real With Arthritis Stories [Winter Edition 2021]

Keeping It Real With Arthritis Stories [Winter Edition 2021]

The Keeping It Real With Arthritis stories are back and better than ever. For the first time, we hear from both men and women. These fifteen stories are a must-read if you or anyone you know happens to be diagnosed with any of the one-hundred types of arthritis out there. These riveting, powerful, and encouraging stories will help those feeling alone and hopeless, to become empowered and hopeful for positive changes in life.

read more
17 Years Later: The Life Lessons Rheumatoid Arthritis Taught Me

17 Years Later: The Life Lessons Rheumatoid Arthritis Taught Me

Today marks my 17th RAnniversary of when I was diagnosed with rheumatoid arthritis. Some people may think it’s odd to coin this time of my life as an anniversary, or anything to be celebrated. But I am proud of how far I have come on my journey filled with challenging downs and adversity. The resiliency and perseverance are worth celebrating. Life is worth celebrating. Because when chronic illness is thrown into the recipe, we call life, it forces you to look at your lack of immortality. A lot of my life lessons come from being chronically ill most of my youth.

read more
Holiday Gift Ideas {Curated By A Spoonie For Spoonies and Non-Spoonies}

Holiday Gift Ideas {Curated By A Spoonie For Spoonies and Non-Spoonies}

I am not Oprah, and this isn’t a list of my favorite things. Well, kind of. But I’m just a girl who happens to 1) live with a chronic illness 2) considers herself to be a quite thoughtful exceptional gift-giver. So, I have curated a list of 12 fun, uplifting, and comforting items for yourself, those living with a chronic illness or not. We can all use some good vibes and support as we head into this holiday season and New Year!

read more
Keeping It Real With Arthritis Stories [Fall 2020 Edition]

Keeping It Real With Arthritis Stories [Fall 2020 Edition]

These arthritis stories by a traditionally published and award-winning author, criminology and psychology student, a fierce advocate, and founder of the #injectwithme campaign, will hopefully help you realize you are not alone and that your goals can be achievable, no matter what life throws your way.

read more

Keeping it Real With Arthritis Stories

Whether you are living with rheumatoid arthritis or another type of arthritis, we all have a unique story that deserves to be voiced, heard and shared. Equally of importance, is showing an accurate depiction of those living with the disease and providing a real-life glance of who the person istheir interests, passions, hobbies, goals, career, likes, dislikes and so on, behind the veil of arthritis.

Not only can sharing our stories raise awareness but also illuminate our paths for us to see that we are not alone on this journey and have  common experiences with one another.

Rheuma tips! Did you know?

Arthritis Thought of the Month

RARA Home Page

“On my journey with rheumatoid arthritis, I have realized that it’s not only about fighting the condition. Living with it one day at a time- is what it’s all about. Every day I chose to keep going, rise above, and embrace all the good, the bad, and the ugly of RA.” -Effie

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